“Why?” we say simultaneously2.
She rubs her sneaker into the carpet. “I need a little cash.”
Brian folds the national news section. “I didn’t think Gap jeans had gotten quite that expensive.”
“I knew you’d be like this,” she says, ready to huff away.
“Hang on.” I sit up, rest my elbows on my knees. “What is it you want to buy?”
“What difference does it make?”
“Anna,” Brian responds, “we’re not forking over six hundred bucks3 without knowing what it’s for.”
She weighs this for a minute. “It’s something on eBay.”
My ten-year-old surfs eBay?
“Okay,” she sighs. “It’s goaltender leg pads.”
I look at Brian, but he doesn’t seem to understand, either. “For hockey?” he says.
“Well, duh.”
“Anna, you don’t play hockey,” I point out, and when she blushes, I realize this may not be the case at all.
Brian presses her into an explanation. “A couple of months ago, the chain fell off my bike right in front of thehockey rink. A bunch of guys were practicing, but their goalie had mono, and the coach said he’d pay me fivebucks to stand in net and block shots. I borrowed the sick kid’s equipment, and the thing is…I wasn’t thatbad at it. I liked it. So I kept coming back.” Anna smiles shyly. “The coach asked me to join the team for real,before the tournament. I’m the first girl on it, ever. But I have to have my own equipment.”
“Which costs $614?”
“And ninety-six cents. That’s just the leg pads, though. I still need a chest protector and catcher and a gloveand a mask.” She stares at us expectantly.
“We have to talk about it,” I tell her.
Anna mutters something that sounds like Figures, and walks out of the room.
“Did you know she was playing hockey?” Brian asks me, and I shake my head. I wonder what else mydaughter has been hiding from us.
We are about to leave the house to watch Anna playing hockey for the first time when Kate announces sheisn’t going. “Please Mom,” she begs. “Not when I look like this.”
She has an angry red rash all over her cheeks, palms, soles, and chest, and a moon face, courtesy of thesteroids she takes to treat it. Her skin is rough and thickened.
These are the calling cards of graft-versus-host disease, which Kate developed after her bone marrowtransplant. For the past four years, it’s come and gone, flaring5 up when we least expect it. Bone marrow4 is anorgan, and like a heart or a liver, a body can reject it. But sometimes, instead, the transplanted marrow beginsto reject the body it’s been put in.
The good news is that if that happens, all the cancer cells are under siege, too—something Dr. Chance callsgraft-versus-leukemia disease. The bad news is the symptomology: the chronic6 diarrhea, the jaundice, theloss of range of motion in her joints7. The scarring and sclerosis wherever there’s connective tissue. I am soaccustomed to this that it doesn’t phase me, but when the graft-versus-host disease flares8 up this badly, I letKate stay home from school. She is thirteen, and appearance is paramount9. I respect her vanity, because thereis so little of it.
But I cannot leave her alone in the house, and we have promised Anna we’ll come watch her play. “This isreally important to your sister.”
In response, Kate flops10 onto the couch and pulls a throw pillow over her face.
Without saying another word I walk to the hall closet and pull a variety of items from drawers. I hand thegloves to Kate, then jam the hat on her head and wind the scarf around her nose and mouth so that only hereyes are visible. “It’ll be cold in the rink,” I say, in a voice that leaves no room for anything but acceptance.
I barely recognize Anna, stuffed and trussed and tied into equipment that, eventually, we wound upborrowing from the coach’s nephew. You cannot tell, for example, that she is the only girl on the ice. Youcannot tell that she is two years younger than every other player out there.
I wonder if Anna can hear the cheering through her helmet, or if she’s so focused on what’s coming towardher that she blocks it all out, concentrating instead on the scrape of the puck and the smack13 of the sticks.
Jesse and Brian sit on the edge of their seats; even Kate—so reluctant to come—is getting into the game. Theopposing goalie, compared to Anna, moves in slow motion. The action switches like a current, the playmoving from the far goal toward Anna’s. The center passes to the right wing, who skates for broke, his bladesslicing through the roar of the cheering crowd. Anna steps forward, sure of where the puck is going a momentbefore it arrives, her knees bent14 in, her elbows pointed15 out.
“Unbelievable,” Brian says to me after the second period.
“She’s got natural talent as a goalie.”
That much, I could have told him. Anna saves, every time.
That night Kate wakes up with blood streaming out of her nose, her rectum, and the sockets16 of her eyes. Ihave never seen so much blood, and even as I try to stanch17 the flow I wonder how much of it she can stand tolose. By the time we reach the hospital, she is dis-oriented and agitated18, finally slipping intounconsciousness. The staff pump her full of plasma19, blood, and platelets to replace the lost blood, whichseems to leak out of her just as quickly. They give her IV fluids to prevent hypovolemic shock, and intubateher. They take CT scans of her brain and her lungs to see how far the bleeding has spread.
In spite of all the times we have run to the ER in the middle of the night, all the times Kate’s relapsed withsudden symptoms, Brian and I know it has never been quite this bad. A nosebleed is one thing; system failureis another. Twice now, she’s had cardiac arrhythmias. The hemorrhaging keeps her brain, heart, liver, lungs,and kidneys from receiving the flow they need to work.
Dr. Chance takes us into the little lounge at the end of the pediatric ICU floor. It is painted with smiley-facedaisies. On one wall is a growth chart, a four-foot-tall inchworm: How Big Can I Grow?
Brian and I sit very still, as if we will be rewarded for good behavior. “Arsenic20?” Brian repeats. “Poison?”
“It’s a very new therapy,” Dr. Chance explains. “You get it intravenously, for twenty-five to sixty days. Todate, we haven’t effected a cure with it. That’s not to say it might not happen in the future, but at the moment,we don’t even have five-year survival curves—that’s how new the drug is. As it is, Kate’s exhausted21 cordblood, allogeneic transplant, radiation, chemo, and ATRA. She’s lived ten years past what any of us wouldhave expected.”
I find myself nodding already. “Do it,” I say, and Brian looks down at his boots.
“We can try it. But in all likelihood, the hemorrhaging will still beat out the arsenic,” Dr. Chance tells us.
I stare at the growth chart on the wall. Did I tell Kate I loved her before I put her to bed last night? I cannotremember. I cannot remember at all.
Shortly after two A.M., I lose Brian. He slips out when I am falling asleep beside Kate’s bed and doesn’t comeback for over an hour. I ask for him at the nurse’s desk; I search the cafeteria and the men’s room, all empty.
Finally I locate him at the end of the hallway, in a tiny atrium that was named in some poor dead child’shonor, a room of light and air and plastic plants that a neutropenic patient could enjoy. He sits on an uglybrown corduroy couch, writing furiously with a blue crayon on a piece of scrap12 paper.
“Hey,” I say quietly, remembering how the kids would color together on the floor of the kitchen, crayonsspilled like wildflowers between them. “Trade you a yellow for your blue.”
Brian glances up, startled. “Is—”
“Kate’s fine. Well, she’s the same.” Steph, the nurse, has already given her the first induction22 of arsenic. Shehas also given her two blood transfusions23, to make up for what she’s losing.
“Maybe we should bring Kate home,” Brian says.
“Well, of course we—”
“I mean now.” He steeples his hands. “I think she’d want to die in her own bed.”
That word, between us, explodes like a grenade. “She isn’t going to—”
“Yes, she is.” He looks at me, his face carved by pain. “She is dying, Sara. She will die, either tonight ortomorrow or maybe a year from now if we’re really lucky. You heard what Dr. Chance said. Arsenic’s not acure. It just postpones24 what’s coming.”
My eyes fill up with tears. “But I love her,” I say, because that is reason enough.
“So do I. Too much to keep doing this.” The paper he has been scribbling25 on falls out of his hands and landsat my feet; before he can reach it I pick it up. It is full of tearstains, of cross-outs. She loved the way itsmelled in Spring, I read. She could beat anyone at gin rummy. She could dance even if there wasn’t musicplaying. There are notes on the side, too: Favorite color: pink. Favorite time of day: twilight26. Used to rea dWhere the Wild Things Are, over and over, and still knows it by heart.
All the hair stands up on the back of my neck. “Is this…a eulogy27?”
By now, Brian is crying, too. “If I don’t do it now, I won’t be able to when it’s really time.”
I shake my head. “It’s not time.”
I call my sister at three-thirty in the morning. “I woke you,” I say, realizing the minute Zanne gets on thephone that for her, for everyone normal, it is the middle of the night.
“Is it Kate?”
I nod, even though she cannot hear that. “Zanne?”
“Yeah?”
I close my eyes, feel the tears squeeze out.
“Sara, what’s the matter? Do you want me to come down there?”
It is hard to speak around the enormous pressure in my throat; truth expands until it can choke you. As kids,Zanne’s bedroom and mine shared a hallway, and we used to fight about leaving the light on through thenight. I wanted it burning; she didn’t. Put a pillow over your head, I used to tell her. You can make it dark,but I can’t make it light.
“Yes,” I say, sobbing28 freely now. “Please.”
Against all odds29, Kate survives for ten days on intense transfusions and arsenic therapy. On the eleventh dayof her hospitalization, she slips into a coma30. I decide I will keep a bedside vigil until she wakes up. And I dothis for exactly forty-five minutes, until I receive a phone call from the principal of Jesse’s school.
Apparently31, the metal sodium32 is stored in the high school science laboratory in small containers of oil,because of its volatile33 reaction with air. Apparently, it is water-reactive, too, creating hydrogen and heat.
Apparently, my ninth-grader was bright enough to realize this, which is why he stole the sample, flushed itdown the toilet, and exploded the school’s septic tank.
After he is expelled for three weeks by the principal, a man who has the decency34 to ask after Kate whilebasically telling me that my eldest35 is destined36 for the State Penitentiary37, Jesse and I drive back to the hospital.
“Needless to say, you’re grounded.”
“Whatever.”
“Until you’re forty.”
Jesse slouches, and if it is possible, his brows knit even more closely together. I wonder when, exactly, I gaveup on him. I wonder why, when Jesse’s history is not by any stretch as disappointing as his sister’s.
“The principal’s a dick.”
“You know what, Jess? The world’s full of them. You will always be up against someone. Some thing.”
He glares at me. “You could take a conversation about the frigging Red Sox and somehow turn it back toKate.”
We pull into the hospital parking lot, but I make no move to shut off the car. Rain pelts38 the windshield.
“We’re all pretty gifted at that. Or were you blowing up the septic tank for some other reason?”
“You don’t know what it’s like being the kid whose sister is dying of cancer.”
“I have a fairly good idea. Since I’m the mother of the kid who is dying of cancer. You’re absolutely right, itdoes suck. And sometimes I feel like blowing something up, too, just to get rid of that feeling that I’m goingto explode any minute.” I glance down and notice a bruise39 the size of a half-dollar, right in the crook40 of hisarm. There’s a matching one on the other side. It is telling, I suppose, that my mind immediately races toheroin, instead of leukemia, as it would with his sisters. “What’s that?”
He folds his arms. “Nothing.”
“What is it?”
“None of your business.”
“It is my business.” I pull down his forearm. “Is that from a needle?”
He lifts his head, eyes blazing. “Yeah, Ma. I shoot up every three days. Except I’m not doing smack, I’mgetting blood taken out of me on the third floor here.” He stares at me. “Didn’t you wonder who else waskeeping Kate in platelets?”
He gets out the car before I can stop him, leaving me staring out a windshield where nothing is clearanymore.
Two weeks after Kate is admitted to the hospital, the nurses convince me to take a day off. I come home andshower in my own bathroom, instead of the one used by the medical stafff. I pay overdue41 bills. Zanne, who isstill with us, makes me a cup of coffee; it is fresh and ready when I come down with my hair wet andcombed. “Anyone call?”
“If by anyone you mean the hospital, then no.” She flips42 the page of the cookbook she’s reading. “This issuch bullshit,” Zanne says. “There is no joy in cooking.”
The front door opens and slams shut. Anna comes racing43 into the kitchen and stops abruptly44 at the sight ofme. “What are you doing here?”
“I live here,” I say.
Zanne clears her throat. “Contrary to appearances.”
But Anna doesn’t hear her, or doesn’t want to. She has a smile as wide as a canyon45 on her face, andbrandishes a note in front of me. “It was sent to Coach Urlicht. Read it read it read it!”
Dear Anna Fitzgerald,Congratulations on being accepted into the Girls in Goal Summer Hockey Camp. This year camp will be heldin Minneapolis, from July 3–17. Please fill out the attached paperwork and medical history and return by4/30/01. See you on the ice!
Coach Sarah TeutingI finish scanning the letter. “You let Kate go to that sleep-away camp when she was my age, the one for kidswith leukemia,” Anna says. “Do you have any idea who Sarah Teuting is? The goalie on Team USA, and Idon’t just get to meet her, I get to have her tell me what I’m doing wrong. Coach got a full scholarship forme, so you don’t even have to pay a dime46. They’ll fly me out on a plane and give me a dorm room to stay inand everything and nobody gets a chance like this, ever—”
“Honey,” I say carefully, “you can’t do this.”
She shakes her head, as if she’s trying to make my words fit. “But it’s not now, or anything. It’s not till nextsummer.”
And Kate might be dead by then.
It is the first time I can remember Anna ever indicating that she sees an end to this time line, a moment whenshe might finally be free of obligation to her sister. Until that point, going to Minnesota is not an option. Notbecause I am afraid of what might happen to Anna there, but because I am afraid of what might happen toKate while her sister is gone. If Kate survives this latest relapse, who knows how long it will be beforeanother crisis happens? And when it does, we will need Anna—her blood, her stem cells, her tissue—righthere.
The facts hang between us like a filmy curtain. Zanne gets up and puts her arm around Anna. “You knowwhat, bud? Maybe we should talk about this with your mom some other time—”
“No.” Anna refuses to budge47. “I want to know why I can’t go.”
I run a hand down my face. “Anna, don’t make me do this.”
“Do what, Mom,” she says hotly. “I don’t make you do anything.”
She crumples48 the letter and runs out of the kitchen. Zanne smiles weakly at me. “Welcome back,” she says.
Outside, Anna picks up a hockey stick and starts to shoot against the wall of the garage. She keeps this up fornearly an hour, a rhythmic49 beat, until I forget she is out there and begin to think a home might have its ownpulse.
Seventeen days after Kate is admitted to the hospital, she develops an infection. Her body spikes50 a fever. Sheis pancultured—blood, urine, stool, and sputum sent out to isolate51 the organism—but is put on a broad-spectrum antibiotic52 right away in the hopes that whatever is making her sick might respond.
Steph, our favorite nurse, stays late some nights just so that I don’t have to face this by myself. She brings mePeople magazines filched53 from the day surgery waiting rooms, and holds sunny one-sided conversations withmy unconscious daughter. She is a model of resolve and optimism on the surface, but I have seen her eyescloud with tears as she is sponge-bathing Kate, in the moments when she doesn’t think I can see her.
One morning, Dr. Chance comes in to check on Kate. He wraps his stethoscope around his neck and sitsdown in a chair across from me. “I wanted to be invited to her wedding.”
“You will,” I insist, but he shakes his head.
My heart beats a little faster. “A punch bowl, that’s what you can buy. A picture frame. You can make atoast.”
“Sara,” Dr. Chance says, “you need to say good-bye.”
Jesse spends fifteen minutes in Kate’s closed room, and comes out looking for all the world like a bombabout to explode. He runs through the halls of the pediatric ICU ward11. “I’ll go,” Brian says. He heads downthe corridor in Jesse’s direction.
Anna sits with her back to the wall. She is angry, too. “I’m not doing this.”
I crouch54 down next to her. “There is nothing, believe me, I’d rather make you do less. But if you don’t, Anna,then one day, you’re going to wish you had.”
Belligerent55, Anna walks into Kate’s room, climbs onto a chair. Kate’s chest rises and falls, the work of therespirator. All the fight goes out of Anna as she reaches out to touch her sister’s cheek. “Can she hear me?”
“Absolutely,” I answer, more for myself than for her.
“I won’t go to Minnesota,” Anna whispers. “I won’t ever go anywhere.” She leans close. “Wake up, Kate.”
We both hold our breath, but nothing happens.
I have never understood why it is called losing a child. No parent is that careless. We all know exactly whereour sons and daughters are; we just don’t necessarily want them to be there.
Brian and Kate and I are a circuit. We sit on each side of the bed and hold each other’s hands, and one ofhers. “You were right,” I tell him. “We should have taken her home.”
Brian shakes his head. “If we hadn’t tried the arsenic, we’d spend the rest of our lives asking why not.” Hebrushes back the pale hair that surrounds Kate’s face. “She’s such a good girl. She’s always done what youask her to do.” I nod, unable to speak. “That’s why she’s hanging on, you know. She wants your permissionto leave.”
He bends down to Kate, crying so hard he cannot catch his breath. I put my hand on his head. We are not thefirst parents to lose a child. But we are the first parents to lose our child. And that makes all the difference.
When Brian falls asleep, draped over the foot of the bed, I take Kate’s scarred hand between both of mine. Itrace the ovals of her nails and remember the first time I painted them, when Brian couldn’t believe I’d dothat to a one-year-old. Now, twelve years later, I turn over her palm and wish I knew how to read it, or betteryet, how to edit that lifeline.
I pull my chair closer to the hospital bed. “Do you remember the summer we signed you up for camp? Andthe night before you left, you said you’d changed your mind and wanted to stay home? I told you to get a seaton the left side of the bus, so that when it pulled away, you’d be able to look back and see me there, waitingfor you.” I press her hand against my cheek, hard enough to leave a mark. “You get that same seat in Heaven.
One where you can watch me, watching you.”
I bury my face in the blankets and tell this daughter of mine how much I love her. I squeeze her hand one lasttime.
Only to feel the slightest pulse, the tiniest grasp, the smallest clutch of Kate’s fingers, as she claws her wayback to this world.
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1
mow
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| v.割（草、麦等），扫射，皱眉；n.草堆，谷物堆 | |
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simultaneously
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| adv.同时发生地，同时进行地 | |
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bucks
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| n.雄鹿( buck的名词复数 )；钱；（英国十九世纪初的）花花公子；（用于某些表达方式）责任v.（马等）猛然弓背跃起( buck的第三人称单数 )；抵制；猛然震荡；马等尥起后蹄跳跃 | |
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marrow
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| n.骨髓；精华；活力 | |
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flaring
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| a.火焰摇曳的，过份艳丽的 | |
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chronic
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| adj.(疾病)长期未愈的，慢性的；极坏的 | |
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joints
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| 接头( joint的名词复数 )； 关节； 公共场所（尤指价格低廉的饮食和娱乐场所） （非正式）； 一块烤肉 （英式英语） | |
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flares
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| n.喇叭裤v.（使）闪耀( flare的第三人称单数 )；（使）（船舷）外倾；（使）鼻孔张大；（使）（衣裙、酒杯等）呈喇叭形展开 | |
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paramount
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| a.最重要的，最高权力的 | |
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flops
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| n.失败( flop的名词复数 )v.（指书、戏剧等）彻底失败( flop的第三人称单数 )；（因疲惫而）猛然坐下；（笨拙地、不由自主地或松弛地）移动或落下；砸锅 | |
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ward
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| n.守卫，监护，病房，行政区，由监护人或法院保护的人（尤指儿童）；vt.守护，躲开 | |
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scrap
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| n.碎片；废料；v.废弃，报废 | |
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smack
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| vt.拍，打，掴；咂嘴；vi.含有…意味；n.拍 | |
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bent
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| n.爱好，癖好；adj.弯的；决心的，一心的 | |
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pointed
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| adj.尖的，直截了当的 | |
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sockets
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| n.套接字，使应用程序能够读写与收发通讯协定(protocol)与资料的程序( Socket的名词复数 )；孔( socket的名词复数 )；（电器上的）插口；托座；凹穴 | |
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stanch
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| v.止住（血等）；adj.坚固的；坚定的 | |
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agitated
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| adj.被鼓动的，不安的 | |
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plasma
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| n.血浆，细胞质，乳清 | |
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arsenic
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exhausted
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| adj.极其疲惫的，精疲力尽的 | |
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induction
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| n.感应，感应现象 | |
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transfusions
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| n.输血( transfusion的名词复数 )；输液；倾注；渗透 | |
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postpones
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| v.延期，推迟( postpone的第三人称单数 ) | |
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scribbling
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| n.乱涂[写]胡[乱]写的文章[作品]v.潦草的书写( scribble的现在分词 )；乱画；草草地写；匆匆记下 | |
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twilight
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| n.暮光，黄昏；暮年，晚期，衰落时期 | |
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eulogy
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| n.颂词；颂扬 | |
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sobbing
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| <主方>Ⅰ adj.湿透的 | |
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odds
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| n.让步，机率，可能性，比率；胜败优劣之别 | |
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coma
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| n.昏迷，昏迷状态 | |
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apparently
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| adv.显然地；表面上，似乎 | |
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sodium
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| n.（化）钠 | |
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volatile
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| adj.反复无常的，挥发性的，稍纵即逝的，脾气火爆的；n.挥发性物质 | |
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decency
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| n.体面，得体，合宜，正派，庄重 | |
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eldest
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| adj.最年长的，最年老的 | |
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destined
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| adj.命中注定的；(for)以…为目的地的 | |
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penitentiary
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| n.感化院；监狱 | |
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pelts
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| n. 皮毛，投掷, 疾行 vt. 剥去皮毛，（连续）投掷 vi. 猛击，大步走 | |
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bruise
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| n.青肿，挫伤；伤痕；vt.打青；挫伤 | |
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crook
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| v.使弯曲；n.小偷，骗子，贼；弯曲(处) | |
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41
overdue
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| adj.过期的，到期未付的；早该有的，迟到的 | |
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42
flips
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| 轻弹( flip的第三人称单数 )； 按（开关）； 快速翻转； 急挥 | |
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43
racing
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| n.竞赛，赛马；adj.竞赛用的，赛马用的 | |
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abruptly
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| adv.突然地，出其不意地 | |
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45
canyon
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| n.峡谷，溪谷 | |
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46
dime
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| n.（指美国、加拿大的钱币）一角 | |
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47
budge
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| v.移动一点儿；改变立场 | |
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48
crumples
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| 压皱，弄皱( crumple的第三人称单数 )； 变皱 | |
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rhythmic
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| adj.有节奏的，有韵律的 | |
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50
spikes
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| n.穗( spike的名词复数 )；跑鞋；（防滑）鞋钉；尖状物v.加烈酒于( spike的第三人称单数 )；偷偷地给某人的饮料加入（更多）酒精（ 或药物）；把尖状物钉入；打乱某人的计划 | |
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51
isolate
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| vt.使孤立，隔离 | |
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52
antibiotic
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| adj.抗菌的；n.抗生素 | |
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53
filched
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| v.偷（尤指小的或不贵重的物品）( filch的过去式和过去分词 ) | |
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54
crouch
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| v.蹲伏，蜷缩，低头弯腰；n.蹲伏 | |
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55
belligerent
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| adj.好战的，挑起战争的；n.交战国，交战者 | |
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